Young Adults With Spina Bifida Face a Crisis in Care.
Turning 18 should not mean a drop in Spina Bifida care
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Danielle and Marlon live hundreds of miles apart, but their stories echo one another’s. Both were born with Spina Bifida. Both grew up cared for by doctors who knew their complex medical needs and treated them like family. And both discovered, as young adults, what families call the "Adult Care Cliff ”—when young adults leave the guided and specialized pediatric care they’ve known and trusted and are forced into a fragmented, adult care system that does not understand them.