Advocacy That Changes Lives

This is Shoshana's Story.

At just 20 years old, Shoshana Siegel has endured challenges that many of us can scarcely imagine.

Born with Spina Bifida, Shoshana has faced a lifetime of medical complexities and barriers, none more heartbreaking than the recent story of her right leg amputation—a decision she was forced to make at just 18 years old.

Shoshana’s life took a devastating turn when improper orthotic footwear led to recurring wounds and infections, each more debilitating than the last.

Despite countless surgeries and years of painful wound care, the infections persisted. Insurance companies denied her access to properly fitted braces, setting off a vicious cycle that eventually led to the loss of her leg.

Today, Shoshana is a full-time wheelchair user, navigating the physical and emotional toll of her journey. Yet, she refuses to let these obstacles define her. Through her advocacy work with the Spina Bifida Association, she’s persevered and found a voice not only for herself but for others living with Spina Bifida.

That’s why SBA is leading the charge for vital orthotic legislation—to ensure that people with Spina Bifida have access to the medically necessary equipment they need to live healthy, fulfilling lives.

Will you help us change lives today?